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IN THIS ISSUE

Features Articles

The History of von Willebrand Disease

Prevalence and Incidence

von Willebrand Factor Gene

Classification

Diagnosis and Management

Share Your Expertise

Online Resources

References

Related Resources

References

1. Sadler JE, Budde U, Eikenboom J, et al. Update on the pathophysiology and classification of von Willebrand disease: a report of the Subcommittee on von Willebrand Factor. J Thromb Haemost 2006; 4: 2103-2114.
2. Introduction to Von Willebrand Disease. Available at http://www.haemophilia.org.za/Vonwil1.htm Accessed July 19, 2009
3. Nichols WL, Hultin MB, James AH, Manco-Johnson MJ, Montgomery RR, Ortel TL, Rick ME, Sadler JE, Weinstein M. von Willebrand Disease (vWD): evidence-based diagnosis and management guideline, the National Heart, Lung, and Blood Institute (NHLBI) Expert Panel report (USA). Haemophilia 2008:14, 171-232.
4. Lillicrap D; James P. World Federation of Hemophilia. Treatment of Hemophilia. Von Willebrand Disease: An Introduction for the Primary Care Physician. January 2009 Number 47
5. Lillicrap D. World Federation of Hemophilia. Treatment of Hemophilia. The Basic Science, Diagnosis, and Clinical Management of von Willebrand Disease. April 2008 Number 35.
6. Kasper CK. Von Willebrand Disease. An introductory discussion for young physicians, October, 2005. Available at http://www.carolkasper.com/11_5_05/VWD.pdf. Accessed July 19, 2009.
7. Kouides PA. Current Understanding of von Willebrand’s Disease in women – some answers, more questions. Haemophilia 2006 12 (Suppl. 3) 143-151
8. Sadler JE. Von Willebrand Factor. Minireview. The Journal of Biological Chemistry 1991 Dec;266;34:22777-22780.
9. Pruthi RK. A Practical Approach to Genetic Testing for von Willebrand Disease. Mayo Clin Proc 2006; 81(5):679-691.
10. Laffan M, Brown SA, Collins W, Cummings AM, Hill FGH, Keeling D, Peake IR, Pasi KJ. The diagnosis of von Willebrand disease: a guideline from the UK Haemophilia Centre Doctors.
11. Zimmerman C. Introduction to von Willebrand Disease. National Hemophilia Foundation Nurses’ Guide to Bleeding Disorders. 200.
12. Sadler JE. Von Willebrand disease type 1: a diagnosis in search of a disease. Blood 2003;101:2089-2093.
13. Goodeve A, Eikenboom J, Castaman G et al. Phenotype and genotype of a cohort of families historically diagnosed with type 1 von Willebrand disease in the European study, Molecular and Clinical Markers for the Diagnosis and Management of type 1 von Willebrand Disease (MCMDM-1VWD). Blood 2007. 109:112-121.
14. U.S. Department of Health and Human Services. National Institute of Health. National Heart, Lung, and Blood Institute. The Diagnosis, Evaluation, and Management of von Willebrand Disease. Full Report. Available at http://www.nhlbi.nih.gov/guidelines/vwd/vwd.pdf. Accessed July 20, 2009.
15. Lyons SE, Bruck ME, Bowie EJ, Ginsburg D. Impaired intracellular transport produced by a subset of type IIA von Willebrand disease mutations. J Biol Chem 1992 Mar; 267(7): 4424-4430.
16. Ruggeri ZM, Zimmerman TS. Variant von Willebrand’s Disease. Characterization of two subtypes by analysis of multimeric composition of Factor VIII/von Willebrand Factor in plasma and platelets. J Clin Invest 1980 Jun;65(6):1318-1325.
17. Lankhof H, Damas C, SchiphorstME, IJsseldijk MJW, et al. Functional Studies on Platelet Adhesion with Recombinant von Willebrand Factor Type 2B Mutants R543Q and R543W under Conditions of Flow. Blood 1997 Apr; 89(80): 2766-2772.
18. Federici AB. Clinical diagnosis of von Willebrand disease. Haemophilia 2004; 10 (Suppl.4): 169-176.
19. Federici AB, Canciani MT. Clinical and laboratory versus molecular markers for a correct classification of von Willebrand disease. Haematologica 2009;94(5):610-615.
20. Goodeve AC, James P. von Willebrand Disease. Gene Reviews. Available at http://www.ncbi.nih.gov/bookshelf/br.fcgi?book=gene&part=von-willebrand.
21. Favaloro EJ, Lillicrap d, Lazzari MA, Cattaneo M, Mazurier C, Woods A, Meschengieser S, Blance A, Kempfer AC, Hubbard A, Chang A. von Willebrand disease: laboratory aspects of diagnosis and treatment. Haemophilia 2004; 10 (Supple.4): 164-168.
22. Mannucci M. Desmopressin (DDAVP) in the Treatment of Bleeding Disorders: The First 20 Years. Review Article. Blood 1997; 90(7): 2515-2521.
23. Mannucci M. How I treat patients with von Willebrand disease. Blood 2001; 97: 1915-1919.
24. Gioia KP. Hemophilia and von Willebrand Disease Therapy. National Hemophilia Foundation Nurses’ Guide to Bleeding Disorders, 2002.
25. Pasi KJ, Collins PW, Keeling DM, Brown A, Cumming AM, Dolan GC, Hay CRM, Hill FGH, Laffan M, Peake IR. Management of von Willebrand disease: a guideline from the UK Haemophilia Centre Doctors’ Organization. Haemophilia 2004, 10:218-231.
26. Federici AB, Castaman G, Mannucci PM. Guidelines for the diagnosis and management of von Willebrand disease in Italy. Haemophilia 2002, 8:607-621.
27. Paper R. Women with Bleeding Disorders. National Hemophilia Foundation Nurses’ Guide to Bleeding Disorders. 2002.

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Related Resources

1. World Federation of Hemophilia http://www.wfh.org
2. The Hemophilia Alliance http://www.hemoalliance.org
3. The Association of Hemophilia Clinic Directors of Canada http://www.ahcdc.ca
4. The National Hemophilia Foundation http://www.hemophilia.org
5. Center for Disease Control & Prevention http://origin.cdc.gov
6. Canadian Hemophilia Society http://www.hemophilia.ca/en/care-and-treatment/comprehensive-care-standards
7. Hemophilia Society–Madras Chapter http://hemophiliachennai.com
8. The Haemophilia Society http://www.haemophilia.org.uk
9. The Haemophilia Alliance http://www.haemophiliaalliance.org.uk
10. Passport: Global Treatment Centre Directory http://www.wfh.org/2/8/8_1_Passport_Directory.htm

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