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IN THIS ISSUE

Features Articles

Reasons for Emergency Care:

• Trauma
• Inability to Administer Home Therapy
• Prolonged Bleeding
• Pain Management

General Guidelines for Emergency Care

The Role of Hemophilia Comprehensive Care Centers

Share Your Expertise

Online Resources

References

Related Resources

References

1. Singleton T, Kraus-Jarres R, Leissinger C. Emergency department care for patients with hemophilia and von Willebrand disease. The Journal of Emergency Medicine 2007; 20:1–8.
2. Mishra P, Naithani R, Dolai T, Bhargava R, Mahapatra M, Dixit A, Seth T, Kumar R, Saxena R. Intracranial haemorrhage in patients with congenital haemostatic defects. Haemophilia 2008; 14:952–955.
3. Neufeld E, Saxena K, Fritz R, Temoszko P. Hemophilia bleed management protocol. Boston Hemophilia Center. April 2009.
4. Hoots WK. Emergency care issues in hemophilia. World Federation Hemophilia. Treatment of Hemophilia. November 2007, Number 43.
5. Revel-Vilk S, Golomb M, Achonu C, Stain A, Armstrong D, et al. Effect of intracranial bleeds on the health and quality of life of boys with hemophilia. J Pediatr 2004;144:490–495.
6. Roy N. Emergency room care. Nurses’ Guide to Bleeding Disorders. National Hemophilia Foundation 2002; 1–17.
7. Harvie A, Lowe G, Forbes C, Prentice C, Turner J. Intraspinal bleeding in haemophilia: successful treatment with factor VIII concentrate. Journal of Neurology, Neurosurgery, and Psychiatry 1977; 40: 1220–1223.
8. Friday R, Pollack I, Bowen A, Pollack A, Ragni M. Spontaneous spinal subdural hematoma in a young adult with hemophilia. Journal of the National Medical Association 1999; 91:289–294.
9. Eyster ME, Gill F, Blatt P, et al. Central nervous system bleeding in hemophiliacs. Blood 1978; 51(6):1179–1188.
10. Mayo Clinic Staff. Concussion. Available at http://www.mayoclinic.com/health/concussion/DS00320.
11. Wang TY, Horng CT, Cheng SH, et al. Optic disc hemorrhages in a patient with hemophilia A. Int J Hematol 2008; 87:550–552.
12. Markowitz R, Mendel J. Abstract. Retropharyngeal bleeding in haemophilia. British Journal of Radiology 1981; 54:521–523.
13. Furie B, Limentani SA, Rosenfield CG. A practical guide to the evaluation and treatment of hemophilia. Blood 1994; 84:3–9.
14. World Federation Hemophilia, 2005. Guideline for the management of hemophilia. Bleeding manifestations in hemophilia. Incidence of different sites of bleeding. http://www.wfh.org/2/docs/Publications/Diagnosis_and_Treatment/Guidelines_Mng_Hemophilia.pdf
15. Gilbert M. Musculoskeletal complications in hemophilia: The Joint World Federation Hemophilia. Treatment of Hemophilia. March 1997, Number 6.
16. Butler RB, Crudder SO, Riske B, Toal S. Basic Concepts of Hemophilia. Atlanta: Centers for Disease Control and Prevention, 2001; 4–5.
17. Orto C, White E, Christie B. Nurses’ Guide to Bleeding Disorders. New York: National Hemophilia Foundation, 2002; 4–8.
18. Madigan R, Hanna W, Wallace S. Acute compartment syndrome in hemophilia: a case report. The Journal of Bone and Joint Surgery 1981; 63-A(8):1327–1328.
19. Compartment Syndrome. Medline Plus. U.S. National Library of Medicine and the National Institutes of Health. http://www.nlm.nih.medlineplus/ency/article/001224.htm
20. Bush M, Roy N. Clinical Articles. Hemophilia emergencies. J Emerg Nurs 1995; 21:531–540.
21. Castaman G. Menorrhagia in women with congenital disorders of hemostasis. http://www.gendermedicine.com/Uploads/assets/castaman.pdf
22. Lee CA, Chi C, Pavord R, et al. The obstetric and gynaecological management of women with inherited bleeding disorders: review with guidelines produced by a taskforce of UK Haemophilia Centre Doctors’ Organization. Haemophilia 2006; 12:301–336.
23. Paper R. Women with Bleeding Disorders. National Hemophilia Foundation Nurses’ Guide to Bleeding Disorders, 2002.
24. Hay CRM. Acquired haemophilia. Clinical Haematology. 1998; 11(2):287–303.
25. Harrison’s Online, Part 5, Section 3, Chapter 102, Circulating Anticoagulants.
26. Bainton R, Markis M. The diagnosis and management of acquired hemophilia. CME Bull Haematol 2000; 3(1): 3–5.
27. Guideline for the management of hemophilia. World Federation Hemophilia, Adjunctive management, 2005.
28. DiMichele D. Inhibitors: resolving diagnostic and therapeutic dilemmas. Haemophilia. 2002; 8(3):280 - 287.
29. St. Marie, B. Core Curriculum for Pain Management Nursing, Second Edition. WB Saunders Company, 2010.
30. Canadian Hemophilia Society. Pain: The Fifth Vital Sign, 2005.
31. Comprehensive Care of Hemophilia. Global News Series for Hemophilia Nurses. April 2009. http://www.solutionsight.com/html/newsletters.html
32. Nursing Group of Hemophilia Region VI. Emergency care for patients with hemophilia: an instructional manual for medical professionals. http://www. HemophiliaEmergencyCare.com
33. Canadian Hemophilia Society. The emergency room: prepare to succeed—a guide to the ER for persons with bleeding disorders. http://www.hemophilia.ca/files/er2.pdf

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Related Resources

1. World Federation of Hemophilia http://www.wfh.org
2. The Hemophilia Alliance http://www.hemoalliance.org
3. The Association of Hemophilia Clinic Directors of Canada http://www.ahcdc.ca
4. The National Hemophilia Foundation http://www.hemophilia.org
5. Center for Disease Control & Prevention http://origin.cdc.gov
6. Canadian Hemophilia Society http://www.hemophilia.ca/en/care-and-treatment/comprehensive-care-standards
7. Hemophilia Society–Madras Chapter http://hemophiliachennai.com
8. The Haemophilia Society http://www.haemophilia.org.uk
9. The Haemophilia Alliance http://www.haemophiliaalliance.org.uk
10. Passport: Global Treatment Centre Directory http://www.wfh.org/2/8/8_1_Passport_Directory.htm

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