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IN THIS ISSUE
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Features Articles
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Comprehensive Care of Hemophilia Overview
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International Nursing Day
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World Hemophilia Day
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Role of Nurse in Hemophilia Care
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Hemophilia Nurses Poem
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References
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Related Resources
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References
- Soucie JM, Nuss R, Evatt B, et.al Mortality among males with hemophilia: relations with source of medical care. Blood 2000, 96, 437-442.
- Butler R. Nurses’ Guide to Bleeding Disorders. New York. National Hemophilia Foundation 2002; 1-7.
- Evatt BL. The natural evolution of haemophilia care: developing and sustaining comprehensive care globally. Haemophilia 2006, 12 (Suppl. 3), 13-21.
- Hoot WK. Comprehensive Care for Hemophilia and Related Inherited Bleeding Disorders: Why It Matters. Current Hematology Reports 2003, 2:395-401.
- Evatt BL, Black C, Batorova A, Streets A, Srivastava A. Comprehensive care for haemophilia around the world. Haemophilia 2004, 10 (Suppl. 4), 9-13.
- Smith P, Levine P, Directors of Eleven Participating Hemophilia Centers. The Benefits of Comprehensive Care of Hemophilia: A Five-Year Study of Outcomes. Am J Public Health 1984, 74, 616-617.
- National Hemophilia Foundation at www.hemophilia.org.
- World Federation of Hemophilia at http://www.wfh.org.
- World Federation of Hemophilia, What is Gap, at http://www.wfh.org/2/5/5_1_1_What_is_Gap.htm.
- World Federation of Hemophilia, Benefits of Comprehensive Care for the Treatment of Bleeding Disorders, at http://www.wfh.org/2/docs/Events/WHD-2009/2009-WHD_Info-Sheet.pdf.
- Heijnen L, Dirat G, Chen L, Tulaar ABM, Moysisyan L, Nassar NMM, Batistella LR. The role of the physiatrist in the hemophilia comprehensive care team in different parts of the world. Hemophilia 2008 (Suppl.3), 153-161.
- The Hemophilia Handbook 2002. Hemophilia of Georgia Inc. p 48-52.
- World Federation of Hemophilia, Improving care beyond our borders. A twinning guide for hemophilia treatment centres, p18-21. WFH: Montreal, Canada, 2002. Available at www.wfh.org.
- Evatt B, Robillard L. Establishing haemophilia care in developing countries: using data to overcome the barrier of pessimism. Haemophilia 2000, 6, 131-134.
- Chandy M. Management of haemophilia in developing countries with available resources. Haemophilia 1995, 1 (Suppl. 1) 44-48.
- Chandy M. Treatment Options in the Management of Hemophilia in Developing Countries. Treatment of Hemophilia. December 2005, Number 37. Available at www.wfh.org.
- Bolton-Maggs P, Pasi KJ. Haemophilias A and B. The Lancet 2003, 361:1801-1809. Available at www.thelancet.com.
- World Federation of Hemophilia, What is Twinning, at http://www.wfh.org/2/5/5_2_2_What-is-Twinning.htm.
- World Federation of Hemophilia, Reaching Beyond Our Borders: A Twinning Guide for Hemophilia Organizations. WFH: Montreal Canada, 2001. Available at www.wfh.org.
- World Federation of Hemophilia, International Hemophilia Training Center Fellowships, at http://www.wfh.org/2/5/5_4_IHTCFellowships.htm.
- Pinto T, Ortiz Z. Haemophilia in the developing world: successes, frustrations,and opportunities. Haemophilia 2004, 10 (Suppl.4), 14-19
- Bird A, Isarangkura P, Almagro D, Gonzaga A, Srivastava A. Factor concentrated for haemophilia in the developing world. Haemophilia 1998, 4, 481-485.
- Pritchard AM, Page D. Integrated specialty service readiness in health reform: connections in hemophilia comprehensive care. Hemophilia 2008, 14, 436-443.
- World Federation of Hemophilia, The Role Of The Nurse In Hemophilia Care, at http://www.wfh.org/2/docs/Programs/IHTC-Nurses-Training-module.pdf.
- World Federation of Hemophilia, History of the Nurses Committee, at http://www.wfh.org/2/8/8_2__1_Link4_Nurses_History.htm.
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Related Resources
- World Federation of Hemophilia http://www.wfh.org
- The Hemophilia Alliance http://www.hemoalliance.org
- The Association of Hemophilia Clinic Directors of Canada http://www.ahcdc.ca
- The National Hemophilia Foundation http://www.hemophilia.org
- Center for Disease Control & Prevention http://origin.cdc.gov
- Canadian Hemophilia Society http://www.hemophilia.ca/en/care-and-treatment/comprehensive-care-standards
- Hemophilia Society–Madras Chapter http://hemophiliachennai.com
- The Haemophilia Society http://www.haemophilia.org.uk
- The Haemophilia Alliance http://www.haemophiliaalliance.org.uk
- Passport: Global Treatment Centre Directory http://www.wfh.org/2/8/8_1_Passport_Directory.htm
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